I’ll buy you a telescope….

….if you can’t see the stars….

And I wouldn’t have it any other way.

Living with an extra needs child is both challenging and inspiring. Some times I have low moments, but they are far outweighed by the sheer delight and immense pride I feel every day. I honestly believe that for some unknown reason I have been chosen to experience more joy than any other parent I know.

My little girl is shining, she radiates love and laughter, she is a star on Earth.

Busy Being Busy

Well, its been a couple of weeks since I last blogged, and I’ve been quite busy. I’ve got a few crafty type things on the go or on the list so generally I’m busy, busy! On the plus side it means that I’m able to ‘do something’ in a day instead of sometimes feeling stressed by always being the Attachhed Parent…maybe the scales are finally starting to tip into balance…?

We have received our beautiful Didymos Ginkgo wrap after finally paying it up. Wrapping is a bit of an art, its all about getting the tensioning right and we really need to practise. As ever, doing anything with a small person who has extra needs is not straightforward. She likes to have her arms out but needs a lot of support around her back so many carries aren’t quite right. But we’ll get there. We also have a Melkaj mei tai on the way as our Ellaroo is outgrown, apparently its gorgeous and I can’t wait to see it. I love mei tai’s and there are some amazing wrap conversions out there, I think the wrap style straps which spread open are just brilliant and combine the best of both the wrap and mei tai features and I imagine they are especially supportive.

So, aside from crafting and carriers, ponies seem to be featuring more and more in our day and we are enjoying the increased contact. There is a lot of work to do with them for the future, but instead of feeling overwhelmed, I’m really looking forward to it all. I’m starting to feel more like me!

Didymos Ginkgo

Taking the time it takes…

If anyone had ever told me while I was pregnant that my little girl wouldn’t be sitting unaided at the age of 2, I’m really not sure how I would have felt. I sometimes wonder what other people make of our situation, I sometimes get the weird feeling that we are out of touch with the general baby-raising population, floating above them in our bubble. Many people find it difficult to relate to us and I think its because of a few reasons.

Firstly, its the perceived ‘hippy’ thing. Breastfeeding, co-sleeping, baby-wearing, attachment parenting, baby-led…it scares people.

Secondly, no matter how beautiful and bright and funny our little girl is, there is clearly issues. It must be awkward for them, not knowing what to say

And lastly, its our attitude. We are easy, we don’t believe in too much pressure. We just rolling along. We were planning on home edding anyway and kind of makes even more sense now.

So on the surface I guess we are living life from a very different viewpoint. If there’s one thing I’ve learnt is that you’ve just got to take the time it takes. There’s no winning post in life, success in life is about how happy you are. We plan on being very happy!!

We are busy this week, we are attending the Heart of the Dragon Festival this weekend so are working on some costume type stuff. It’s nice to go out as a family, just hope the weather is nice for us.